Bath Dad's Epic Run to Raise Awareness for Ultra-Rare Phelan-McDermid Syndrome Monday, August 11, 2025 phelanmcdermid genetics raredisease awareness cureshank bath fundraising autism genetesting charityrun Tom Giles, a father of three from Bath, has undertaken an extraordinary mission to raise awareness about Phelan-McDermid Syndrome (PMS), an ultra-rare genetic disorder affecting only around 3,500 people worldwide. This … Read More