Mike and Laura Davis of Taunton are sharing their poignant story after the heartbreaking loss of their newborn son, Reggie, to a rare genetic condition called Edwards' syndrome. Born in March 2026, Reggie lived for just two …
Sarah Bingham, a 39-year-old mother from Weston-super-Mare, faces a heartbreaking reality after discovering her 14-year-old son Caleb has Friedreich’s ataxia, a rare progressive genetic condition that could limit his life …
Sarah Bingham, a 39-year-old mother from Weston-super-Mare, is grappling with the devastating news that her 14-year-old son Caleb has been diagnosed with Friedreich’s ataxia, a rare and progressive genetic condition that …
Mina Stoddart-Stones from Bridgwater, Somerset, is recognized as a VIP blood donor due to her extraordinarily rare blood type. At just 26 years old, she is one of only nine donors in the UK with a unique combination of blood …
Tom Giles, a father of three from Bath, has undertaken an extraordinary mission to raise awareness about Phelan-McDermid Syndrome (PMS), an ultra-rare genetic disorder affecting only around 3,500 people worldwide. This …
Tom Giles, a father of three from Bath, has undertaken an extraordinary journey to raise awareness about Phelan-McDermid Syndrome (PMS), an ultra-rare genetic condition diagnosed in just 3,500 people worldwide. His son …